Cancer

All posts tagged Cancer

Huh, therapy and self-care do help. Whoda thunk it?

Published June 10, 2021 by Malia

I had a really odd moment in therapy this morning. I went in with a few things to talk about. Nothing too exciting, just some things I’ve been processing and towards the end of session my therapist asked me, “That’s a lot going on. So, how are you doing with all this?”

I thought about it. I thought about how over the last several years (basically my entire adult life), when faced with similar things, I would’ve been sent in such a deep depressive spiral. About how all I would’ve wanted to do is lock myself up and hide away from everyone and everything.

And you know what? That’s not how I feel right now. Sure, I’ve got things going on that fill me with dread and anxiety but good or bad, these things will eventually be in the past, and I’ll hopefully still be here.

I’m learning to be kind to myself. My entire life, I’ve been my biggest critic, my number one enemy. I’ve been fixated on my flaws. Figured that if I made the joke first, I took the stick away from others and the bullying would be lessened. I’ve always been worried about everything, and torn to shreds with a load of guilt for every single bad thing that has happened my entire life.

I’ve come to the realization, my worry has accomplished nothing. For example, I can spend the next 5 months a ball of nerves, constantly freaking out about whether Tom’s cancer is still with us and spreading. But my worry will solve nothing. In November, he will either get good or bad news. There’s a 50% chance of good news, and if I’m going to fixate on anything, I should fixate on having hope. Instead of being my biggest hater, I need to be my biggest fan!

So, what was the odd moment? It was odd being able to look at him and honestly say, “Y’know, I’m actually doing okay with all of this.” And even odder to leave and not be overwhelmed with self-doubt, questioning if I really am okay or did I unintentionally lie to make myself look better than I am. I feel this sense of lightness. Almost giddiness.

No, I’m not cured. But I am mentally healthier. I’m seeing actual progress, and I want to celebrate that!

P.S. While playing with Snapchat earlier today, I captured this magical moment:

Progress

Published May 24, 2021 by Malia

I’m starting this post with a Trigger Warning for suicidal ideation. I’ve been debating writing about this for the last few days, and decided to go ahead with it. As always when I write an out this stuff, I like to include the following reminder: Call the National Suicide Prevention Lifeline (Lifeline) at 1-800-273-TALK (8255), or text the Crisis Text Line (text HELLO to 741741).

Well, it’s been a full week since the official diagnosis of the Big C.

I wish the C stood for “Cookie” in this case.

It’s been a week of processing. I’ll admit, I’ve been very surprised by how much grief I’ve been experiencing. I know I mentioned the grief last week, but I’m still surprised by it. The worst part of processing grief? It’s not linear.

Everyday seems to come with a different feeling. I’ll have a day of sadness, followed by a day of anger and bargaining, followed by sadness, followed by acceptance, followed by sadness. Been feeling sad quite a lot of the time. However, I noticed something on Saturday.

Through all of this, I have not experienced a desire to unalive myself. Usually, when I’m going through high stress, my brain begins this attack of constantly telling me that it would be better if I wasn’t here. That the pain and stress would go away. I spent most of May 2020 through January 2021 dealing with my brain constantly harassing me to just be done with life. It was exhausting, and part of what ultimately led to me deciding not to return to my job.

I’m not saying that I’m cured. I don’t think I am. But I do take it as a positive sign that I am making progress with my mental health.

I’m not okay, and that’s okay.

Published May 20, 2021 by Malia

I went to therapy this morning.

I hadn’t been in a few months, and I realized on Monday, after getting Tom’s official cancer diagnosis from the doctor, that I really needed a session. 

I’m just so overwhelmed by my feelings at present. Since I have a really bad habit of refusing to acknowledge what I’m feeling and just squashing them down deep inside, I’m trying to break that.

Here’s the thing about therapy. I appreciate it. It’s been amazingly helpful. It is not fun. I don’t walk out and immediately feel better. But there’s something about sitting in a judgement free zone, talking about what I’m thinking that really makes a difference.

I’m learning that it’s okay to feel all the feelings. It’s okay to be sad or angry or frustrated or any other emotion that sweeps over me. It’s okay to acknowledge those feelings and give name to them. The important thing is what I do with those feelings.

I think it’s important to point out that just because I’m facing some dark feelings, that doesn’t mean I’ve lost hope or my faith. I’m still reeling from feeling blindsided by all this, plus I’m grieving right now. I’m still dealing with some grief over my old job. I’m grieving my lost babies. I’m grieving putting dreams on hold. And I’m grieving Tom’s kidney. I’m sure that sounds absurd, but that’s just how things are right now.

So, what about Tom? He’s always been incredibly supportive of me getting mental health help. He knows that I’m equally supportive of him seeking help. But doing so is a very personal choice. So, I check in on him regularly, and the door is open if he decides he does want to talk to a professional.

Things are hard, but we will get through it.

Some days adulting is really difficult.

Published May 18, 2021 by Malia

I have an appointment with the endocrinologist today, and I am dreading it.

They asked that I turn in my blood sugar numbers from the last two weeks. Since I currently wear a Continuous Glucose Monitor (CGM) that means what they have is every single blood sugar number my cgm has reported every five minutes for the last 14 days, and it ain’t pretty.

To be fair, I’ve spent the last two weeks in high stress mode. First, I was waiting for Tom’s surgery, and then there was the surgery, followed by days of waiting for results and caring for him. Then there’s the whole official cancer diagnosis. To top it off, I’m trying to compose an appeal letter to the insurance company because they determined that the necessary CT scan Tom had to have of his kidney is only necessary but not medically necessary (I’m still trying to wrap my head around that). And while I know things could be so much worse, and I am grateful that things have gone relatively well, it’s all been very high stress.

If you don’t have to deal with blood sugar monitoring, then you may not be aware of how stress messes with blood sugar. Even if I exercise and eat correctly, my numbers are all over the place. For example, on Saturday my numbers yo-yo’d all day. I went from 108 to 165 to 124 to 230 to 140 and so on. It was exhausting and frustrating.

I’m hoping they just give me a pass at the appointment since I’m currently going through this life experience. I’m genuinely trying to make positive changes in my health, but I’m also trying to keep myself from falling into a depression spiral. I’m just doing the best I can.

P.S. I’m running a giveaway on my Facebook page for some of my greeting cards. Check it out: In A Pinch Grab Bag Giveaway

Today I am waiting…and waiting some more…

Published May 13, 2021 by Malia

Surgery is over.

Tom is still in recovery, but they’ll be moving him soon. I’m so anxious to see him.

We didn’t have to check in until 8 a.m. so we were able to get up at a normal time. Groot was not thrilled her people were getting up and she moved and went back to sleep in the funniest position:

At least, I thought it was funny how she left her butt hanging out.

Before we left, I got this magical gem of a picture:

I call this the “Paint me like one of your French girls” pose.

Here we are at check-in:

And here we are right before they took him away to relieve him of his kidney and tumor:

And I didn’t realize my mask was on upside down until way later 🤦🏻‍♀️🤦🏻‍♀️🤦🏻‍♀️

The Buffett Cancer Center has this beautiful garden area, and that’s where I hung out until they came to tell me his surgery was finishing up. It’s a beautiful day (although there’s a chilly wind), and here’s where I got to hang:

Being able to be outside in such a beautiful garden was such a gift. It really helped my anxiety.

That’s about all from this neck of the woods. Thank you all for the prayers and good vibes.

No one expects the Spanish Inquisition

Published April 30, 2021 by Malia

This has been a day.

A few weeks back, Tom went in for a physical, and during the visit, the doctor decided she wanted him to get an abdominal ultrasound. Last Friday, he went in for one, and when he got home he told me that he needed to go back in a few hours to get a CT scan done. There was a dark spot that had shown up on his kidney, and the doctor wanted additional imaging done.

Later last Friday, after the CT scan, he was notified that he needed to see a urologist. When they performed the scan, they used contrast and found that the spot on his kidney was receiving blood.

This started one of the longest weeks of my life. I found myself hoping that whatever it was would turn put to be nothing. Just a weird artifact. The worst part, though, was simply not knowing what we were dealing with and what the next step would be.

One small thing, before I go further. When Tom explained to me what was on the scan, he said it was a “dark spot.” This did not translate in my brain the way I think he thought it did. Hence my hope that it was just a weird artifact. However, this is actually what showed up. Guess which kidney is the one in question…

If I had seen this last week I probably would’ve been far more worried than I spent this week feeling.

He has a tumor. A giant tumor. The urologist said that cancer can’t be officially diagnosed until they can actually take a look at the tumor and kidney. That said, according to the urologist so far this appears to be consistent with kidney cancer. Because the tumor is so large they are going to use the surgical robot and remove his entire kidney on May 13th.

When I was sitting on the phone, listening to Tom meet with the urologist (I had permission, since due to Covid precautions I was unable to be there in person), it was a very surreal experience. Initially, when I heard we were most likely looking at cancer, part of me wanted to return to bed, crawl under the covers, and cry. But that was only a part of me, and turns out it was a small part.

Mostly, I feel relieved. No, cancer is not what I wanted to be the diagnosis. No, I don’t want Tom to lose a kidney. So, how can I feel relieved?

1. Tom has two kidneys. And while one is basically filled with a tumor, the other is a healthy kidney.

2. According to the urologist, based on the imaging, the tumor is solely contained in that one kidney. Nothing has spread to other organs.

3. As of right now, post surgery Tom isn’t looking at chemo, radiation, or other long term meds. He’ll have regular checkups over the next 5 years, but that’s it.

4. Knowing is better than hanging out in limbo. I’m grateful we know what we’re most likely dealing with, and that we have a plan for the next month.

I don’t know what the next five years hold. And after this week, I’m reminded, yet again, that I don’t even know what the next day/weeks/months hold. So, the best I can do is continue to hold onto my faith and be grateful for every single second I get with Tom.

Did You Actually Go To Medical School?

Published August 16, 2014 by Malia

When I was in elementary school, I remember classmates circulating a story about a man who had gone in for surgery, and when he woke up he was missing a leg.  Depending on the person telling the story, he either lost both legs, or an arm and a leg, or both legs and both arms.  I’m pretty sure that at some point, in some telling of the tale, he woke up as the Headless Horseman (and was probably missing all his limbs as well).  I learned two things from this, A. Kid’s imaginations are kind of a gruesome playground, and, B. Don’t have surgery, because the doctor will mix you up with another patient and you WILL die (sans all limbs).

When I was in vet tech school, I remember sitting in surgical procedures class, and having a teacher tell us that it was super important to count all your gauze pads-and anything else that came into contact with the patient-before the patient got stitched up, because you didn’t want Fluffy coming back in for having a sponge left inside her accidentally (and having a severe infection from the foreign body).

You always hear stories like this, and I think on some level I didn’t quite believe them until a few years ago when my grampa was staying at a rehab center after surgery.  Two days before he was due to be released, the nurse gave him another patient’s meds.  Turned out that the other patient was taking high levels of morphine.  I’ve always hoped no one got my grampa’s meds, because he was taking large quantities of Coumadin (a blood thinner, for those who aren’t familiar with it).  Grampa ended up back in the hospital for a few days, and his release date got pushed back another week.

All of these things were enough to make me a little nervous about healthcare, but it wasn’t until I started working at the lab that I truly got scared of healthcare.

Now, let me just point out that there are absolutely amazing and fantastic nurses and doctors out there.  My goal here is not to bash, or cast out a net and say, “All healthcare professionals are this way.”  There are people who truly know what they’re doing and do an excellent job at it.  However, in the last year and a half, I’ve started to wonder how many of them there actually are.

I really love my job.  The work is interesting, and I’ve learned far more in the last year and a half than I ever learned in school.  I work in a medical reference lab.  We’re responsible for running tests that doctor’s offices and hospitals can’t run in-house.  I don’t personally perform any of the testing (I’d need a medical lab tech degree for that, and all I have is my vet tech degree and training as a phlebotomist), but I work in the processing department.  Instead of a long drawn out explanation, just think of it as a combination of quality assurance and client care.  I seem to spend a fair amount of time on the phone with clients, and for every call that is smooth and easy to work through, there seem to be about twenty that make you wish you were having a root canal instead.

For example, recently, I had to call a stat result to a doctor.  Not only did this doctor have zero people skills, but when I told him what I was calling about, what the test was, and what the result of the test was along with the normal reference ranges, he said, “I don’t understand what that means.”  It was all I could do not to reply, “You ordered this test!  This is your patient!  What do you mean you don’t understand?!”  Fortunately, it wasn’t a very unusual test, and after about five minutes I was able to explain it well enough to him that he seemed to have grasped whatever it was he didn’t understand.  I hung up the phone and just sat there feeling pity for his patients.

The thing is, those kinds of calls are not out of the norm.  A few weeks ago, one of my co-workers had to call a nurse because a specimen was received that had to be protected from light and frozen within 30 minutes of collection.  The specimen arrived frozen, but unprotected from light.  The nurse didn’t understand the problem, because she had gotten the specimen in the freezer in the 30 minutes.  My co-worker then had to explain that the specimen also needed to either be wrapped in tin foil (not only does it protect the specimen from light, but it protects it from aliens as well), or put into an amber colored tube.

It scares me when things aren’t labeled, or they’re mislabeled.  It scares me when a medical professional doesn’t know that you use a lavender tube to collect a CBC, instead of a serum tube.  It scares me when they don’t know the difference between serum and plasma.  It scares me when they don’t know how to operate a centrifuge.  It scares me when I have to explain something basic to someone who supposedly has more education than I do.  It scares me when people are more interested in discussing their horoscopes, than they are in doing their job correctly.  I don’t care if you’re a Cancer, I care about making sure that the guy with cancer gets prompt and accurate treatment.

I know that mistakes happen.  I know that doctors and nurses are only human.  Sometimes, though, I have to wonder why some of them decided to work in healthcare.  Must be the great hours and the glamorous uniforms.